I know, it's been awhile. Sorry. Just feeling better, but exhausted. Lot's of stuff to tell you though!
First, Jack's appointment at Shriner's went great. The PT isn't worried about his hamstrings. They are very workable. She said to just stretch them every once in a while. His feet are bad, but not horrible. But...it IS something that will affect the way he walks in the future. It will mess up his knees, and hips. So we need to fix it now, while they are still pliable. Ya know? So she wants us to switch doc's up there. We have been seeing a spine specialist, since we originally got into Shriner's with the scoliosis. But now that that is a non issue, she wants him to see a foot specialist. So that will be good. We got in the end of Nov. She wants Jack to have new DAFO's, but we are waiting to see the Dr, and see what he recommends. She thinks he will only need orthotics in his shoes. Guess I should make him wear shoes more often, eh?
It was fun to see Jack up there walking. He thought the revolving door was cool. We had to go in it like 6 times. It was funny. Here's a couple of pics, from my phone. Sorry for the crappiness, otherwise known as the camera phone. Haven't had a chance to take the camera anywhere. Anyway, he was so cute, and couldn't get enough of the door.
And if you go up there and are wondering. THE PARKING GARAGE IS DONE!!! It is so beautiful! It looks like it's always been there. If you are familiar with Shriner's you know the saga of building it. It was like a year behind schedule. And tons of things went wrong. I was expressing my leeriness of parking on it, but was reassured, it was fine! *grin*
Also, I had the amazing opportunity, to attend the most amazing event. This is Ethan. Ethan is my boyfriend. Well, he is kind of young, but you know what I mean. This meeting was to learn about Ethan. Ethi is considered DeafBlind. Check this out, to learn more about the meeting. Be sure to click go here, for more info. It was wonderful. I learned so much about him, and I think everyone there was enlighten, and inspired to be part of his life. It was humbling really. There was so much love in the room. I was honored to be a part of it. Although I feel like I didn't contribute much, I was able to help with set up, and be of service to Ethi's sweet mom. Never thought I'd refer to her as sweet, but there ya go. I think some GREAT things will come out of the meeting.
I got to spend the night with them, me and Jack, which was wonderful beyond words. It was so fun to see Jack interacting with Ethan. And I think Ethan liked Jack too!! One thing that Ethan's Deafblind Consultant said, has stuck with me. She said her main concern was that, "Others are not benefiting from his association." That is so profound to me. I wish I could tell you how amazing it was. But the words are just not coming to me. This little boy has so much to offer. The people who serve and know him, are changed forever. I hope YOU will take the opportunity to get to know Ethan, or someone like him. You will not regret it!!