Sunday, October 21, 2007

Jack and Ethan

I know, it's been awhile. Sorry. Just feeling better, but exhausted. Lot's of stuff to tell you though!

First, Jack's appointment at Shriner's went great. The PT isn't worried about his hamstrings. They are very workable. She said to just stretch them every once in a while. His feet are bad, but not horrible. IS something that will affect the way he walks in the future. It will mess up his knees, and hips. So we need to fix it now, while they are still pliable. Ya know? So she wants us to switch doc's up there. We have been seeing a spine specialist, since we originally got into Shriner's with the scoliosis. But now that that is a non issue, she wants him to see a foot specialist. So that will be good. We got in the end of Nov. She wants Jack to have new DAFO's, but we are waiting to see the Dr, and see what he recommends. She thinks he will only need orthotics in his shoes. Guess I should make him wear shoes more often, eh?

It was fun to see Jack up there walking. He thought the revolving door was cool. We had to go in it like 6 times. It was funny. Here's a couple of pics, from my phone. Sorry for the crappiness, otherwise known as the camera phone. Haven't had a chance to take the camera anywhere. Anyway, he was so cute, and couldn't get enough of the door.

And if you go up there and are wondering. THE PARKING GARAGE IS DONE!!! It is so beautiful! It looks like it's always been there. If you are familiar with Shriner's you know the saga of building it. It was like a year behind schedule. And tons of things went wrong. I was expressing my leeriness of parking on it, but was reassured, it was fine! *grin*


Also, I had the amazing opportunity, to attend the most amazing event. This is Ethan. Ethan is my boyfriend. Well, he is kind of young, but you know what I mean. This meeting was to learn about Ethan. Ethi is considered DeafBlind. Check this out, to learn more about the meeting. Be sure to click go here, for more info. It was wonderful. I learned so much about him, and I think everyone there was enlighten, and inspired to be part of his life. It was humbling really. There was so much love in the room. I was honored to be a part of it. Although I feel like I didn't contribute much, I was able to help with set up, and be of service to Ethi's sweet mom. Never thought I'd refer to her as sweet, but there ya go. I think some GREAT things will come out of the meeting.

I got to spend the night with them, me and Jack, which was wonderful beyond words. It was so fun to see Jack interacting with Ethan. And I think Ethan liked Jack too!! One thing that Ethan's Deafblind Consultant said, has stuck with me. She said her main concern was that, "Others are not benefiting from his association." That is so profound to me. I wish I could tell you how amazing it was. But the words are just not coming to me. This little boy has so much to offer. The people who serve and know him, are changed forever. I hope YOU will take the opportunity to get to know Ethan, or someone like him. You will not regret it!!


Lisa M. said...

I too am going to write about this. I've been waiting for days to everything to sink in.

It would not have been the same with out you there, and I hope you really really know that. I am profoundly grateful for your help and your contribution.

It was really neat to see Jax and Eth play.

Thank you for being who you are.

Mel said...

I too loved the quote that you shared. Ethan has so much to offer and knowing him is a privilege.

Thanks for writing about this:)

Cindy said...

I love revolving doors too!! We don't see them enough here on the central coast!!

The Person Centered Plan sounds like a great idea. Evan needs one of those!! We have an IEP next week, I'm NOT looking forward to it!!

Danielle said...

I love Ethan. I fell in love with him the first time I met him. I think all our special kids have something very important to teach others, including their parents.
I wish I could have seen E and Jack play together, how awesome!
We should do lunch one of these days. Got any Mondays or Tuesdays available any time soon?