Monday, is coming fast, and it has lots of things in store.
First off, we have Jack's IFSP-(parent teacher conference for infants). I have mixed feelings about it. I have loved his therapists, all of them. I love having them in our home. I consider them friends. Jack is doing so well, I am wondering what services they will take away. What friends, we will stop playing with. It feels stupid, to NOT want him to do well, so we can continue to get services.
We did most of the "testing", which is standerized...SO ANNOYING... but he did well. His motor skills are great. His fine motor is great. He can jump, catch a ball, kick, and walk on his tippy toes. His speech is coming along. He's getting more and more signs, that he will do spontaniously. And he copies the ones we show him. Granted, it's a very modified, JACK version...but he does them. But the only "words" he has, are Mom, HUH?, uh oh!, NO! He can meow, pant like a dog, and does a "Jack version" of roar, quack, and neigh. I don't remember if I told this here, but when we tell him to say something...he mouths it. NO SOUND! Just moves his mouth. And usually nods his head. It's funny. Reminds me of when I was waitressing, and in training they taught to nod your head when you ask if the want a drink! HAHA...
So we'll see how the meeting goes, and what conclusions will be made. For 2 years, I've been excited for him to go to special ed preschool. Now I worry he won't qualify. Part of me wants him to be around "regular" kids, the other wants him to stay FAR away from them. And with special ed, he will go when he turns three, not on the school year. There's the whole bus issue too...ya..he is SO NOT going on the bus- at 3!!!!!!! Some say speech will qualify him. Some say the hydro, and cleft will qualify him. WHo knows for sure. I know, I know, it's a year away...but hey...I'm SO GOOD at freaking out, before it's neccessary! :)
Then after school, are tryouts for Missoula Children's Theater. It's a wonderful company that travels around the country, putting on shows, in a week. The tryouts, will be tomorrow from 4-6, they will pick the cast and crew, then practice all week, and perform it on Sat. It is TRUELY amazing what they pull off. The most amazing thing...it's not painful at ALL!! heehee...I know you've been to plays that were painful...
So Nick and Parker are trying for that. hmmm...Emma is 5, but I think she has to be in kindergarten. Eh...we'll see.
There's a few other things, that I don't feel like devulging quite yet. But soon. Ya know, I LOVE to be busy, thrive on it as a matter of fact. It's going into it, that freaks me out!!
Wish me luck!
Showing posts with label IEP. Show all posts
Showing posts with label IEP. Show all posts
Sunday, April 6, 2008
Saturday, September 22, 2007
Updates and thoughts...
I've had so many deep thoughts this week, I realized I haven't given any updates! So here goes...
On being a guest speaker:
It went great! It was so fun. And people had really good questions. It's funny how when you tell a story, you don't realize what you've left out. Some were medical questions, some emotional. The professor asked, "Where do you find your strength?" How's that for a loaded question. The number one thing I said, was FAITH. Faith that he would be ok, faith that we would be able to handle it, if he wasn't. I also said how having support of family and friends makes a HUGE difference, and support groups too. I would totally be in the corner, sucking my thumb(to quote a friend) if I didn't have the support of those who have been there done that... They loved the video. I turned off the music, and let it play again, while I answered questions, so they could see the pictures again. They liked it, I think.
So, of course I forgot a couple of key points, but the most important one...not to terminate based of prenatal findings, I remembered. And, I told them about Early Intervention and how important it is, and how much they have helped Jack.
It really is amazing to me, that not only did I do well, but wasn't really nervous. Anyone who knows me can attest to the fact the old me, would NOT have done that!
On being the Sacrament Meeting Chorister:
It's going really well. So far. We've all been there together, it's been nice. Last week, Emma sat with me for the first two songs. She was cute, and so excited to sit up front! I've also had at least two people say..."SURE, I'd LOVE to sit with the kids!" One friend even said, "You don't even have to ask, I'll just do it." SO nice!!! It's so fun to stand up in front of everyone, and see my favorite people smiling at me! I also LOVE to sit up there, and watch Jack. He is so cute, and I love watching Steve with him. He loves Daddy so much!
On Emma's broken arm:
She's doing great! It smells, and is filthy, but she really isn't complaining much.
She gets it off, a week from Monday. If you missed the picture before, here it is. She was SO adamant on NOT having her picture taken. She has her own mind, if you didn't know that already! So this one, I snuck in!!
She's been so excited to have people sign it, and shows it off all the time!!
She's even been great about taking a bath, she just puts her arm on the side of the tub. She even does a good job washing her hands!! I'm proud of her, she's been great! Although, her follow-up with urology, is this week, SO dreading it, I can't even tell you. I'm going to call on Monday, and see about some"don't care drugs". ugh
On the boys and school:
Nick is doing GREAT. His IEP is the BEST thing we could have EVER DONE He is struggling with old issues in a couple of classes, but the other 4, he has an A in! Math, the reason we even STARTED the IEP process, is going great! He has lots of extra help, and has had two tests now, and got an A on both!! He LOVES Jr High and Young Mens, and is just a busy little bee. He always has something going on. It's so fun watching him grow up!
Parker is doing great too! He's loving 4th grade, and has gotten really great about taking his meds, ON HIS OWN!!! YAY! Such a triumph! He's really growing up too! He does hate getting left behind, when Nick is off being "older". But that's life right! I think it's my fault. When they were little, they came as a set. They did everything together. So I recognize, he doesn't like being left behind. Hopefully, he'll be over it by the time Nick goes on a mission, or at least when he gets married! I picture him running after the limo...screaming...WHY CAN'T I COME??!! Ok, don't tell him I said that!!! *grin*
On Jack:
He's doing fine. We have another CT scan, a week from Monday. I think it will be fine, but who knows. One thing I am concerned about, is his under-bite, seems to be getting worse. His bottom teeth, completely cover his top two teeth.the middle front ones. I don't think they would do anything now, but it just adds to my worry, ya know? And his ankles are just getting worse. Oh my heck. We are currently waiting for a physical therapy consult, with our old PT, from early intervention. I'm tempted to just call up to Shriner's, and make an appointment. I think I'll wait to hear from Mike, and go from there! His OT, really wants to get some ideas, and helping him walk with his legs straighter. He walks so well, but with his knees bent. His hamstrings are pretty tight, which has always been an issue. So we'll see how that goes!
On ME:
It's been a week now, and I think the meds are helping with my mood. But I've also been really busy this week, with things that are good for my mood. If that makes sense. But... I never, at one point, didn't want to do anything. Ok, maybe a little, but I was able to overcome it, and go for it! That's HUGE!! I'm so glad I got off my butt and did something about my funk!
Also, MANY people this week, have had SO many great things to say. I encourage you to go read the comments. I especially want to thank Lisa, and Dan. You guys have helped me SO much lately. You ALWAYS have the right thing to say, and REALLY support me in everything I do. And have helped me see how great I can be! Even though I tell you, you are are mean(all the time) ;), I really appreciate it. Thanks guys!! I LOVE YOU GUYS...more than you'll ever know! I'm so luck to have you both in my life! And Steve has been great lately too, helping with the kids, and being willing to let me loose a few times. That is a GREAT mood stabilizer, getting out of the house!!! Thank You, Honey! I LOVE YOU!
Well, that's it for now. Lisa dragged me to a conference, and I really want to tell you about it, but I'll save it for tomorrow! :)
Oh, I also added another "Kid-ism"(scroll to the bottom of the page), and you can see all my Youtube videos, under those! Check it out!
On being a guest speaker:
It went great! It was so fun. And people had really good questions. It's funny how when you tell a story, you don't realize what you've left out. Some were medical questions, some emotional. The professor asked, "Where do you find your strength?" How's that for a loaded question. The number one thing I said, was FAITH. Faith that he would be ok, faith that we would be able to handle it, if he wasn't. I also said how having support of family and friends makes a HUGE difference, and support groups too. I would totally be in the corner, sucking my thumb(to quote a friend) if I didn't have the support of those who have been there done that... They loved the video. I turned off the music, and let it play again, while I answered questions, so they could see the pictures again. They liked it, I think.
So, of course I forgot a couple of key points, but the most important one...not to terminate based of prenatal findings, I remembered. And, I told them about Early Intervention and how important it is, and how much they have helped Jack.
It really is amazing to me, that not only did I do well, but wasn't really nervous. Anyone who knows me can attest to the fact the old me, would NOT have done that!
On being the Sacrament Meeting Chorister:
It's going really well. So far. We've all been there together, it's been nice. Last week, Emma sat with me for the first two songs. She was cute, and so excited to sit up front! I've also had at least two people say..."SURE, I'd LOVE to sit with the kids!" One friend even said, "You don't even have to ask, I'll just do it." SO nice!!! It's so fun to stand up in front of everyone, and see my favorite people smiling at me! I also LOVE to sit up there, and watch Jack. He is so cute, and I love watching Steve with him. He loves Daddy so much!
On Emma's broken arm:
She's doing great! It smells, and is filthy, but she really isn't complaining much.
She gets it off, a week from Monday. If you missed the picture before, here it is. She was SO adamant on NOT having her picture taken. She has her own mind, if you didn't know that already! So this one, I snuck in!!She's been so excited to have people sign it, and shows it off all the time!!
She's even been great about taking a bath, she just puts her arm on the side of the tub. She even does a good job washing her hands!! I'm proud of her, she's been great! Although, her follow-up with urology, is this week, SO dreading it, I can't even tell you. I'm going to call on Monday, and see about some"don't care drugs". ugh
On the boys and school:
Nick is doing GREAT. His IEP is the BEST thing we could have EVER DONE He is struggling with old issues in a couple of classes, but the other 4, he has an A in! Math, the reason we even STARTED the IEP process, is going great! He has lots of extra help, and has had two tests now, and got an A on both!! He LOVES Jr High and Young Mens, and is just a busy little bee. He always has something going on. It's so fun watching him grow up!
Parker is doing great too! He's loving 4th grade, and has gotten really great about taking his meds, ON HIS OWN!!! YAY! Such a triumph! He's really growing up too! He does hate getting left behind, when Nick is off being "older". But that's life right! I think it's my fault. When they were little, they came as a set. They did everything together. So I recognize, he doesn't like being left behind. Hopefully, he'll be over it by the time Nick goes on a mission, or at least when he gets married! I picture him running after the limo...screaming...WHY CAN'T I COME??!! Ok, don't tell him I said that!!! *grin*
On Jack:
He's doing fine. We have another CT scan, a week from Monday. I think it will be fine, but who knows. One thing I am concerned about, is his under-bite, seems to be getting worse. His bottom teeth, completely cover his top two teeth.the middle front ones. I don't think they would do anything now, but it just adds to my worry, ya know? And his ankles are just getting worse. Oh my heck. We are currently waiting for a physical therapy consult, with our old PT, from early intervention. I'm tempted to just call up to Shriner's, and make an appointment. I think I'll wait to hear from Mike, and go from there! His OT, really wants to get some ideas, and helping him walk with his legs straighter. He walks so well, but with his knees bent. His hamstrings are pretty tight, which has always been an issue. So we'll see how that goes!
On ME:
It's been a week now, and I think the meds are helping with my mood. But I've also been really busy this week, with things that are good for my mood. If that makes sense. But... I never, at one point, didn't want to do anything. Ok, maybe a little, but I was able to overcome it, and go for it! That's HUGE!! I'm so glad I got off my butt and did something about my funk!
Also, MANY people this week, have had SO many great things to say. I encourage you to go read the comments. I especially want to thank Lisa, and Dan. You guys have helped me SO much lately. You ALWAYS have the right thing to say, and REALLY support me in everything I do. And have helped me see how great I can be! Even though I tell you, you are are mean(all the time) ;), I really appreciate it. Thanks guys!! I LOVE YOU GUYS...more than you'll ever know! I'm so luck to have you both in my life! And Steve has been great lately too, helping with the kids, and being willing to let me loose a few times. That is a GREAT mood stabilizer, getting out of the house!!! Thank You, Honey! I LOVE YOU!
Well, that's it for now. Lisa dragged me to a conference, and I really want to tell you about it, but I'll save it for tomorrow! :)
Oh, I also added another "Kid-ism"(scroll to the bottom of the page), and you can see all my Youtube videos, under those! Check it out!
Friday, August 10, 2007
Things I learned last night.
I went to an IEP workshop last night! WOW! SO great!! Here are some of the GREAT things I learned:
~I am VERY lucky to live in Murray School District. They have a fabulous Special Ed program, for Nick and Jack.
~I'm going to make up a "profile" of sorts, for Nick, to give to all his teachers. It will list his strengths, and the things he needs help with, and will have his picture on it. When I get it all typed up, let me know if you want to see it, and I'll send you a copy!
~IEP goals, are suggestions, and I am in charge! If I don't like something, I need to speak up!
~You too, can go to this workshop, and you should if you have an IEP. And live in Utah. :) Here is where to get info!
Here are somethings I learned, when I should have been in bed:
~Trampoline accidents ALWAYS happens when I'm trying to do something for one specific child.
~Emma CAN be convinced that I know best.
~Iceberg, closes at 11:00 pm. In the summer. So stupid.
~When you pull into the parking lot of PCMC's ER, and there is one space, you're not going to get in and out.
~Parents, in the ER in middle of the night, are tired, and stressed. And kids are sleepy.
~I should think about WHAT is on the floor that I just slipped on, and fell down, in front of the entire ER waiting room, before I clean it up.
~My butt WILL fall asleep with Emma asleep on my lap, for and hour and a half.
~Wake up Emma- more than we did, BEFORE starting the procedure.
~ALWAYS, ask questions, and be nice to the staff. They are nicer to you!!
~Babies in respiratory distress, stress me out. The baby behind the curtain from us couldn't breath. ugh... makes me sad, and feel yucky. I can't breathe either.
~Watching a little girl come in on an ambulance, is yucky. And when it's 2 am, it's worse.
~The freeway to my house, from the hospital, is COMPLETELY empty, at 3 am. The entire 11 mile stretch home, I was the only one on the road. And, it looks completely different.
~Emma looks like Frankenstein!...
~I am VERY lucky to live in Murray School District. They have a fabulous Special Ed program, for Nick and Jack.
~I'm going to make up a "profile" of sorts, for Nick, to give to all his teachers. It will list his strengths, and the things he needs help with, and will have his picture on it. When I get it all typed up, let me know if you want to see it, and I'll send you a copy!
~IEP goals, are suggestions, and I am in charge! If I don't like something, I need to speak up!
~You too, can go to this workshop, and you should if you have an IEP. And live in Utah. :) Here is where to get info!
Here are somethings I learned, when I should have been in bed:
~Trampoline accidents ALWAYS happens when I'm trying to do something for one specific child.
~Emma CAN be convinced that I know best.
~Iceberg, closes at 11:00 pm. In the summer. So stupid.
~When you pull into the parking lot of PCMC's ER, and there is one space, you're not going to get in and out.
~Parents, in the ER in middle of the night, are tired, and stressed. And kids are sleepy.
~I should think about WHAT is on the floor that I just slipped on, and fell down, in front of the entire ER waiting room, before I clean it up.
~My butt WILL fall asleep with Emma asleep on my lap, for and hour and a half.
~Wake up Emma- more than we did, BEFORE starting the procedure.
~ALWAYS, ask questions, and be nice to the staff. They are nicer to you!!
~Babies in respiratory distress, stress me out. The baby behind the curtain from us couldn't breath. ugh... makes me sad, and feel yucky. I can't breathe either.
~Watching a little girl come in on an ambulance, is yucky. And when it's 2 am, it's worse.
~The freeway to my house, from the hospital, is COMPLETELY empty, at 3 am. The entire 11 mile stretch home, I was the only one on the road. And, it looks completely different.
~Emma looks like Frankenstein!...
Thursday, August 9, 2007
July Yippee, and more stress...
I told you I've been crawling out of this hellish life/hole, I've dug for myself, right!Well...
I would like to announce to the world wide web: I have made dinner AND kept the kitchen clean for almost a week!!! I just couldn't contain myself!
I seriously deserve a medal!! I've been in that...fix something for Emma, make Jack a bottle, and the rest fend for yourselves. Or ...pizza, chinese, or Arby's. I know...it's sad. And...eat it walking around the house, or sitting on the couch, or on the floor, on a blanket sometimes. There were NEVER an clean dishes, cuz emptying the dishwasher is a boys' chore. So it was emptied over time as you needed something.
So this week, I decided to turn it all around, and Steve asked me to! :) We have had a meal, at the table, with REAL plates, and a clean kitchen at the end of the night, for a week.
It's been hard, but so worth it! Thanks for letting me share!!
~*~
So... Nick is all registered for school. UGH! We've already had a problem. As I told you before Nick got an IEP at the end of last year. Part of it includes a very cool class, every day, called applied skills. Well, it wasn't on his schedule. *sigh* Which means, the "assisted ed"(instead of special ed) teacher hasn't looked over Nicks schedule. We talked to, NOT, his guidance councilor, and she is fixing it. (she was available, and his was not-they go by alphabet) But it does make me nervous. If it's starting out this way...ya know? I';m going to a workshop tonight, about getting the most out of your IEP, so I'm hoping that will help!
I'll keep you posted on that.
~*~
Also, my neighbor, invited Parker to go "camping" with them. It is for 3 days, and about 2 hours away. They are going to Bear Lake, with a bunch of people from her mom's work. And she told me, a lot of those people drink(not lemonade and soda) and such. We decided not to let him go. I feel so bad. I know how much he wanted to go, I want to go! I just don't think he is old enough to go away for 3 days. He is also very impulsive and distracted. He wanders off, and doesn't even know he did. He also has been dealing with panic attacks. They have gotten better, but you never know when one is going to pop up. AND he has trouble sleeping. He has slept over at their house a few times, and come home at 2 am, cuz he couldn't sleep and had a panic attack! I know, he's almost 10. But he just isn't ready. I'm trying to "go with my boobs", and trust my mommy instinct. But he is SO mad, and hurt. I don't know. Any insight you might have would help. Even to validate me!!
~*~
Well, I'm off to PTA meeting, to official start the school year. Last year I brought someone to make sure I don't sign up for stuff. This year, I'm going it alone. Wish me luck!!!
I would like to announce to the world wide web: I have made dinner AND kept the kitchen clean for almost a week!!! I just couldn't contain myself!
I seriously deserve a medal!! I've been in that...fix something for Emma, make Jack a bottle, and the rest fend for yourselves. Or ...pizza, chinese, or Arby's. I know...it's sad. And...eat it walking around the house, or sitting on the couch, or on the floor, on a blanket sometimes. There were NEVER an clean dishes, cuz emptying the dishwasher is a boys' chore. So it was emptied over time as you needed something.
So this week, I decided to turn it all around, and Steve asked me to! :) We have had a meal, at the table, with REAL plates, and a clean kitchen at the end of the night, for a week.
It's been hard, but so worth it! Thanks for letting me share!!
~*~
So... Nick is all registered for school. UGH! We've already had a problem. As I told you before Nick got an IEP at the end of last year. Part of it includes a very cool class, every day, called applied skills. Well, it wasn't on his schedule. *sigh* Which means, the "assisted ed"(instead of special ed) teacher hasn't looked over Nicks schedule. We talked to, NOT, his guidance councilor, and she is fixing it. (she was available, and his was not-they go by alphabet) But it does make me nervous. If it's starting out this way...ya know? I';m going to a workshop tonight, about getting the most out of your IEP, so I'm hoping that will help!
I'll keep you posted on that.
~*~
Also, my neighbor, invited Parker to go "camping" with them. It is for 3 days, and about 2 hours away. They are going to Bear Lake, with a bunch of people from her mom's work. And she told me, a lot of those people drink(not lemonade and soda) and such. We decided not to let him go. I feel so bad. I know how much he wanted to go, I want to go! I just don't think he is old enough to go away for 3 days. He is also very impulsive and distracted. He wanders off, and doesn't even know he did. He also has been dealing with panic attacks. They have gotten better, but you never know when one is going to pop up. AND he has trouble sleeping. He has slept over at their house a few times, and come home at 2 am, cuz he couldn't sleep and had a panic attack! I know, he's almost 10. But he just isn't ready. I'm trying to "go with my boobs", and trust my mommy instinct. But he is SO mad, and hurt. I don't know. Any insight you might have would help. Even to validate me!!
~*~
Well, I'm off to PTA meeting, to official start the school year. Last year I brought someone to make sure I don't sign up for stuff. This year, I'm going it alone. Wish me luck!!!
Subscribe to:
Posts (Atom)