Monday, January 18, 2010

We're jumping back in...

Well, as of tomorrow, we are jumping back into the world of monthly appointments, and something to deal with Daily.

Jack is getting a retainer. He's 3. Ok... he'll be 4 soon enough. Crazy huh? Retainers are bad enough on a teenager. UGH

This retainer is to pull his midface out slowly. And by slowly... I mean 2 years. The thought process is to pull gently while he is still growing. Hopefully, this will help us avoid having to do it surgically when he is 8 or 9 years old.

I am feeling very anxious about this. I'm not really sure why. I feel very unprepared. I feel very overwhelmed with my life as it is, and now to add this. I know some of you are saying, add what? Well...

Making sure he is wearing it EVERY NIGHT.

Luckily... it is only an overnight, not an all day, retainer. This may not seem like a big deal, but I work most evenings, so this is out of my hands. I am not very good at giving up control, and having relying on someone else to do it. TO make sure he has it on before he goes to sleep. I can of course make sure it's on when I get home. But if he doesn't have it on, I can't really wake him up to put it on.

I am also worried he won't like it. That it will bother him, and it will be a fight. I'm so tired as it is, and to add fighting with a 4 yr old to improve his life does not sound appealing. Especially when there is daily fighting with others around me, to do things to impove their life. *sigh*

He has been wearing glasses since october-ish. And there are days, he doesn't wear them. Cuz they never got put on before we ran out the door to go to school. I haven't quite gotten the hang of the glasses yet. So to add another appliance to this kids life... ugh.

He will have monthly appointments to tighten it.

I think I will be able to coordinate his appointments with times I will be up there anyway, but not always. Up there, meaning the hospital, or in the area. For those who don't know, we live about 20 minutes from Primary Children's Medical Center. It is not far compared to some who go there, but I HATE to drive. And HATE to drive far even worse. I work a block and a half from my house, if that gives you any indication. :)

I will admit I like everyone in the ortho's office. I enjoyed when he was a baby, going there regularly. It will be fun to "hang out" with the girls regularly for awhile. :) Also, meeting other families going through stuff too. I enjoy the camaraderie of that whole aspect.

Also, I had braces. NOT FUN! I HATED getting them tightened. And this is his whole face, not just teeth. But then... this is Jack. This kid NEVER complains! It's weird. :) But... it is something I'm worried about.


Do you really need further explaination about this?

All that aside. This is something he REALLY REALLY needs. His sweet little face is soooo flat. It makes me kind of sad. It's always been flat, but the bigger he's gotten, the worse the flatness has gotten. The technical term is midface hypoplasia.

So whether I like it or not, we are in for the long haul. I can't wait to see the results! Should be interesting for sure!! :)

How bout some pictures?!

This is from the appointment where he was measured, xrayed and they took lots and lots of pictures. This one was taken at the end. So so sweet. They of course were highly impressed with his good nature. :)

Here is doing the mold. The nurse said she gets thrown-up on all the time. Of course Jack didn't even flinch. heehee

Here is Jack with his molds a few weeks later. He thought they were pretty cool.

These are just two pictures trying to show his sweet flat face. You can't really see it when he is looking at you:

But look at the difference between my face and his.

I'm going to try and track the growth of his face. So be watching for that too!

And... WISH ME LUCK! :)


Sarah said...

Retainer...oye. No fun. Won't mention how long I wore mine. Is he really 4 already? Please tell me he's not 4...and mine is about to turn 4...I like denial.


Amanda said...

That does sound like work. Good luck! He has such a sweet little face!

Meg said...

cute pictures!

Joy Howse said...

Wishing you luck on it all. I get you. the driving, the finances, the coordinating appointments, the giving up of control, all of it. I remember it all too well for Aiden when he did the NAM as an infant for his cleft. You will be in my thoughts and I do look forward to seeing the progression and hearing about how mom is doing through it all. :) Hang in there and before you know it you will be writing about him going off to college. *adorable pics BTW, love the haircut!

Erika said...

Wow, good luck. A retainer does not sound fun...but that would be awesome if it eliminated a surgery. And oh my goodness...those last two pictures are adorable! Jack is SO handsome.

Annie of Blue Gables said...

Good luck. I love reading your blog. For some reason, FB just doesn't cut it for detail.

snakeriverwalton said...

Say hi to Nina while you're up there. She's my fave!! BTW when we talk I have some awesome MD gossip!

Megatron said...

What a wonderful mommy you are. Jack is truly blessed to have parents who care about him so much and are investing time, energy, and lots of money into something that will improve his life in the long run. My hat goes of to you!