Monday, July 20, 2009

Thoughts before clinic '09

Today we have cranio facial clinic. If you don't know how it goes. We get to the hospital around 12:30, and sit and wait. And wait, and wait.

Clinic is great. Great in concept. We go on one day, and see all the doctors on the cleft team. We see Plastics, ENT, Ortho, Speech, Audiology, and state financial people. See, great. Except the waiting. It's only once a year, I really shouldn't complain. :)

So this yr. This year, I think the ortho will talk about starting to pull his midface forward. I don't know, maybe he'll wait. From the beginning, we have talked about doing it when he was 3 or 4. His underbite is pretty severe. When his teeth are cleched, his bottom teeth completly cover is top teeth, and a little over. His sweet little profile is so flat. But, it's him. I have doubt about changing the way he looks! *sigh*

I also think he has a small fistula, but I could be wrong. Since his hard palate was fixed, he doesn't have stuff coming out of his nose anymore, but I still think there is a hole, up by his gum line, that is bigger than it was 3 months ago.

I'm interested in how his ears are doing too... His tubes fell out, about 4 or 5 months ago. When we went swimming the other day, he was tugging on them. I'm sure I'm making more of it, than it is. Hopefully.

Then there is Emma. Last year, I took her to the ENT because she just doesn't sleep well, and her tonsils are huge. I was hopeing it would get better, but it just hasn't. So she is coming with, to revisit getting her tonsils out. *SIGH*

Should be a long day.... I'll update tomorrow! Hopefully. Haven't been too good about that have I! ;)


Joy Howse said...

I hope that all goes well at the team meeting and that you get all your questions answered in a timely manner. I understand the waiting frustration. At Aiden's first appointment we waited FOREVER. When I asked if they had a microwave or a place to get HOT water to make a bottle for the baby they told me they didn't. How can you expect small babies to be at a place for over 3-4 hours and not think that they might need to eat during that time? Frustrating! Looking forward to a positive update.

Mandy said...

Hope the clinic appt. went well. But my thoughts on Emma are get them out!!! That is the BEST thing we have done for Caleb and Holden. Not a fun recovery, but so worth it. Caleb was bad from birth with snoring but Holden developed it over time and now they don't snore and sleep better.

snakeriverwalton said...

so- how did it go? you'll hav to update me since I wasn't staffing yesterday.