Reflux and Scrapbooking

Emma had her follow-up. I was SO nervous. But Tuesday, she brought home Rumplebear. The class bear. He comes home with each child a few times during the year, and he has a journal, to write about his adventures. So we took him to the hospital. He even got his own ultrasound! It was so nice having him with us!

Her nuclear cystogram, was kind of a nightmare. She did NOT want the catheter. Who does? But did ok! Then when it was time to take it out, and "go" on her own, she FREAKED OUT. Screaming and crying. She held it, for like 8 minutes. BUT...it was kind of good. It proved...HER REFLUX IS GONE!!!!!!!!! WOO HOO!!! Even with her holding it, it never went back up...YIPPEE!! BUT...she has a UTI. The night before, she was crying that her bladder hurt. They always send some to the lab, when they do the cystogram, and sure enough, there was bacteria. She is doing better now! The doctor said, 2/3 of kids that have this surgery, will still get bladder infections or UTI's. It just won't hurt her kidneys now. And...we never have to go back again. Of course, if she has problems, ya...but as of right now...she's done! Cool huh...

I also had to make a scrapbook page for Emma's class. Like an "about me" page, for a class scrapbook. This was my first attempt at digital scrapbooking. What do you think? Oh...I'm looking for praise and accolades... *grin*

I'm here...treading water...

Sorry it's been so long. Many emotional things going on. Trying to crawl out of the hellish life I've dug for myself. I'm on the up climb I think. I hope. It is up to me after all.

So let's see... with my Mom's help, The boys are getting there room cleaned up. They have bunk beds that have been stacked since Jack was born, but Parker feeling isolated I guess, on top. So last night we moved their beds around, and their furniture. They LOVE it! And Emma and Jack like it too, cuz they can play in there now. My mom said, "How does so much stuff get on their floor?" I said..."Seriously...they just drop it when they are done!" Anyway, I hope they will keep it nice. And ya, ya, I need to make them. *sticking tongue out*

Jack is just all over the place. Yesterday, he climbed onto my chair, up the back, and was playing with stuff on the mantel. OY VEY... Every time I turn around, he is into something else! We've missed alot of church this summer, for lots of reasons, illness, out of townness, laziness. So people haven't really seen Jack walking yet. In our womens meeting, some one was addressing the group, and commented on Jack walking. And what a miracle he is.

You know, I forget. When he's splashing in the toilet, eating poop like it's a brownie, or dumping out a bag of cereal on the floor, or throwing a hissy fit, cuz I walked by and didn't pick him up. I don't know how I could forget , but I do. I look at him now, and I don't think there is anything wrong with him. He has his MRI on the 13th. I'm SO curious what it will show. So curious. His ankle turn in still when he walks, and I haven't put his DAFO's on in weeks. I'm sure they don't even fit him now. But he is doing good, so I don't worry. BUT...I worry that he should wear them, and I'm causing him future problems. Whatever...

Emma is doing better everyday. We had her follow up last week, and a renal ultrasound. They found that her right kidney is still dilated. Which is normal, but needs to be rechecked. And...they are going to have to do a nuclear cystogram, which is to put it lightly....HORRID. The last time she had it done, she was MORTIFIED, to say the least. *sigh* I think I'm going to call and see if I can get her some valium or something. It's not till Sept 29th. But I am SO not looking forward to it. This one, I can't sugarcoat. UGH... When we went to the hospital for her follow up, she wanted to go to the fountain near the front door, and make a wish. Her wish..."I wish I didn't have to have surgery". It's funny, and sad.

So Nick. Nick turns 12 a week from Friday. I'm not sure how I feel about this. I'm trying not to think about how old it makes me. But this 12th birthday weekend, is HUGE. He starts Jr High on his birthday. He graduates from Primary, our children's church group. And starts going to Young Men's, our church youth group. He also will become a deacon, and pass the Sacrament. Here's another great article about all his changes at church. Of course I think he's not ready. But I'm pretty sure every mom does. They have also invited Nick to go to Youth Conference. THIS gave me a panic attack. It's a fun spiritual weekend, that when I was a teenager, you couldn't go till you were 14. This is on a smaller level, so the 12 and 13 yr old CAN go. ANYWAY....lots of changes coming up for Nick. And me...wish me luck!

So I decided to try a sippy cup with Jack again... Check it out...again...ignore me...you can here him SWALLOW!!! Sorry, I can't get it to embed. Stupid google.

So that is us, Oh...and check kid-isms, there is a new one!!!

Vacation?

This weekend is the first family vacation we have had since we got pregnant with Jack. If truth be told, ON our last vacation, was when we got pregnant. I know, TMI. ANYWAY....

We are heading to Vegas! But this isn't your normal family vacation. We are going to a Family Conference, but we will be split up. Steve and I have classes to go to. Nick has his age group, Parker has his, and Jack and Emma will go to kids camp! You can see our whole schedule at print program. I am excited for the boys, Nick and Parker, to get to do things, and learn, and meet new friends. But I'm nervous about them not having a real vacation. We don't have much time. Steve has taken so much time off work. Last week alone! So...

We are heading out of here on Sat. We are staying in St. George, before heading to Vegas. It's about a 7 hours drive to Vegas, 5 to St. George, WITH NO KIDS!! People have questioned, why stop in St. George. Well, my original answer was to break up the drive. As I have thought about it, Saturday will be our family day. In a perfect world. We'll get up bright and early, and head out before 8:00 am. Maybe even Friday night, if funds pan out... I'd LOVE to drive over to the Grand Canyon, but I'm sure that won't happen.

We'll be so busy in Vegas, I'm really looking forward to Sat. being just us. If we went straight to Vegas, we'd be with all the conference goers already. This way, it's a vacation before the vacation! I REALLY hope it will bring us back together. I'm tempted to leave my laptop home. I'm sure that won't happen though...*smirk* I just want to hang out with my family, ya know? At home, everyone is doing their own thing. Going their own separate ways, sitting in front of a box.

Emma is getting better everyday. But evenings are still hard. I just found out today, that the kids camp/child care, will be "manned" by moms, and respite workers! I feel SO MUCH better knowing that. I knew, they would have people in there who can handle kids with special needs. But it was confirmed this morning. And ya know, the whole conference takes place in a small area of the hotel, so it's not like we'll be in another building or something.

Wish me luck on packing for 5 people. Steve told me last night all he needed was a shirt and a pair of shorts, and he was set! *rolling eyes* My stomach flips, thinking about packing. Emma started yesterday. *rolling eyes again* I'm making my lists, and checking them twice, and then again! I'm sure I'll forget something. Let's just hope it's not anything too expensive. Last time, when we went to Logan, I forgot Jack's bottles... *sigh* Had to turn around.

Things I want to do in Vegas:

~ CVS I really want to go, but I won't die if I can't. It's an emotional thing. There is no CVS in Utah, I know, I'm a dork.
~ In and Out Burger! Oh my they are yummy! I think the boys will love them!
~ Shark Reef. We went when Emma was about 2. It is SO fun. My favorite part is the jelly fish!

I know, short list, but I told you, we are JAM PACKED!!

Wish me luck on bringing my tech dependent family back together... it's gonna be an adventure!

Oh the cleverness of me...

Today is SO MUCH BETTER!!! Her urine came back normal. But the nurse suggested giving her a shallow bath. Of course she refused. So I put Jack in, and she soon followed!

I also put the ditropan, and miralax in her choc milk, and she drank it ALL!! She SO MUCH BETTER!! Funny story about the miralax. I did it last night too, she drank a little and walked away. Well I walked past her drink later and it was gone. I knew Emma didn't drink it. I called out to the house, "Who drank the rest of Emma's milk?" Nothing. I started laughing. "I hope you know there was medicine in it!" Later in the evening, Steve says, "Um, what was in Emma's milk." I said, "Well, you bowel movements will be much softer!" Oh my...too funny...

So it's looking up for Emma.

Jack on the other hand...his rash is just getting worse. Now it's bleeding, and oozing. I've started giving him motrin, cuz he is in so much pain. It is just so sad. I've tried everything. Airing out, got pooped on; cotton balls with baby oil, just got worse; acidopholus in his bottles twice a day, nystatin on his bum, no wipes, triple paste AND vasoline. The only thing I haven't tired is cloth diapers, cuz I don't have any anymore. *sigh* I'm taking him to the peds tonight at 6:00, hopefully he has a grand idea. But really is there a prescription paste better than a $27 jar of triple paste!? At least he's happy when there is no poop on him. That's something! And he had a good nap this am.

Pray for his bum to get better...thanks!

monday

Sorry, it's been a hard day. She was up all night. Peed all over the bed, and I had to change it. Jack woke up, and she was screaming. All at about 2:30 am! I called the urolgoist office this morning, and they think she might have an infection. So she wanted to have her urine checked at PCMC. Jack had an appointment, to recheck his hearing, so I dropped her off at my mom's.

When I called to have them bring her up, they weren't ready. *sigh* So Jack and I went to get something to eat. He was so cute! He sat in a highchair across the table from me. It was funny to realize he is getting to be a real person! He was playing peek a boo, and OH MY HECK I forgot to tell you all!!! HE IS SIGNING "MORE"!!!! YIPPEEE!!!!!! He is just getting to personable. And his hearing test was fine, fluid in them, but fine. He wants to recheck in 6 weeks. Then see if we need to put tubes in.

Back to Emma. I did finally get her last night to take ALL her meds! SUCH a relief! It was still hard, but she finally did it! Today, when I met her at the car to go to the lab, she was FREAKING OUT!! She had to pee really bad, and was HYSTERICAL. So I ran her into the lab and grabbed what I needed from them, and ran her to the potty. She was crying and whimpering the WHOLE time. And I had to carry her. ugh We get in there and her pull up was soaked, and of course I didn't have a new one. I had to leave her in the PUBLIC bathroom whimpering horribly, and go get her another one from my mom across the hall. It was SO bad. I got the pee, and gave it to the man behind the glass, and he says, "Did you register?" OH MY HELL!!! So I have to leave her, whimpering, with my mom AGAIN!!! We sat in the waiting room of the lab TRYING to get he to take some motrin, to ease her pain, to no avail. They both fell asleep on the 20 min ride home, but of course woke up, as soon as I laid them down.

We did catch a nap later, she and I, and Nick watched Jack. YAY for Nick!

Tonight... she's been GREAT! Happy, ate dinner, was running around, playing with Nick, and I even took her for a walk in the stroller!

Of course I missed to call from the Dr's office about her urine. I'm hoping, since she didn't call back, it came back negative. Actually, I hope it is positive, so we can FIX IT!!!!!!!!!!!!!!!!!!

I'll let you know tomorrow! Here's to hoping we get some sleep tonight!

She's walking update...

As of 3:00, she is great! Waiting for her to start whimpering again....but for now...

And...she combed her own hair...pretty huh...

She's Walking!!

THANK GOODNESS!

She is up and walking around. Only for little bits at a time, but still doing it. She even went potty by herself this morning! And slept in a bit.

She is still in a lots of pain. I just didn't expect this much. She can't even wear pants, because it causes too much pressure on her incision. And she's wearing pull ups, still. You know that commercial, "gotta go, gotta go, gotta go right know". That's her to the extreme. The tiniest amount of pee, sends her into a FRENZY. The bladder spasms, and the anticipation of the stinging on the way out, sends her over the edge. And this happens OFTEN. I haven't really kept score, but we had some friends over yesterday, for 2 and a half hours. She peed 6 times.
At least she's is making it most of the time, so we can just put it back on a few times. I asked the nurse to score me a package in the hospital. Good thing too. I went to get more, and they are $15.99!!!! What is that!?!?!? And I HAVE to get Huggies, because they have velcro sides. I can't "pull" something over her incision. Hopefully she'll be done before I need to by more. That is just ridiculous! UGH!! Pull ups are stupid...

Our other BIG challenge is she REFUSES to take her medicine. I know, I know, she's 4, make her. Um NO!! I was forced to take medicine when I was little, I'm still scarred from it. Besides the fact that I don't want to do anything that will put strain on her incision. She shakes, and hold her hands over her mouth. It is just horrid. We did figure out in the hospital, to have her drinking something yummy through a straw, and squirt the medicine in the other side of her mouth. It works better, but...it takes an hour to get her that far. She just cries, I can't!! I can't!! Or...My tummy doesn't want it!!! I really don't know what to do!

I hate when I can't help her. But I hate it worse, when she won't let me. Wow, I just had an epiphany. This must be how it feels for my mom, and others...trying to fix me!! Sorry bout that...

So she is mostly in good spirits, but I feel like she should be MUCH better by now. She usually bounces back from illness and such. Granted she's never had surgery on her bladder. And for the record, the hospital was a LOVELY vacation, and exactly what I was hoping for.

Oh, and since writing this...it's taken me all day...she took motrin. She needs the ditropan, but hey, it's pain relief right?!?!

To make matters worse, she won't let anyone else take care of her. And physically I'm the only one. When she can't walk, she has to be carried with my holding her under her neck and knees, while she has her arms around MY neck. Both Steve and my mom have bad backs, and this carry would break them both! Carrying her upright puts too much stretch on her incision. Even just picking up up to put her on the couch, or bed, or potty, by her armpits, hurts. And she won't let Steve change her pull up. *sigh*

Tomorrow, Jack has his follow up hearing and ENT appointment. I'm SO worried about leaving her with my mom. Hopefully she'll be walking better by then. *sigh* again.

Speaking of Jack, he has a HORRIBLE diaper rash, AND diarrhea. He needs to be change seems like every hour. And HE is screaming in pain. *sigh* It's really fun, when I'm changing Jack, and he is screaming hysterically and shaking from the sting, and Emma starts whimpering in the other room.

But last night, between diaper screams, he found the dust in a sunbeam. Check out the video, in cute videos, on the right. SO CUTE!!! He is so funny, and seems to know it. When he's not playing in the toilet, he is such a joy! And he's walking SO MUCH!! And LOVES to eat. It's hard to keep up sometimes!!

So say a little prayer for ME!! I'm totally rung out. Hoping to turn another corner soon!

Saturday update!

Check it out!! She is almost sitting!! Look...her feet are OFF the couch!! YAY!

So since we last spoke, she took 2 steps, sat on the potty a few times, sat up BY HERSELF, on the edge of the bed, FINALLY took her meds, and ate something!

Last night was HORRIBLE! She would just whimper, and then cry, but wouldn't take her meds! SO WAS MAKING ME CRAZY!!!!!!!! I hate when she won't let me help her! And she just kept chanting..."I can't do it, I can't do it!" UGH UGH UGH

She had a hard time this morning too, but I think she has turned a corner. I hope she'll get walking soon. Last night she was asking if she could get one of those things with stripes. She said, "You know...how some people have wheel chairs? I need something to help me walk!" So if anyone out there has a little kid walker we could borrow for the next couple of days let me know. I think she meant crutches, but that would make it worse! The steps she took last night, were so funny. I was sitting on the sire of the tub, and told her to walk to me. it was like 2 maybe 3 steps. She backed up like 3 mini steps, and then walked to me! It was too funny!!!

Hopefully, today will only get better!

WE ARE HOME!!!

Just wanted to pop on and say we are home! She's ... OK. Not great, not horrid. Still having pain, still won't stand, and cries when she sits.

I'm so tired...that baby next to us cried most of the night. She woke up at like 2:00 am SCREAMING in pain. It was AWFUL!! I just wanted to go hold her! I even asked, if she could room with us. I did see what looked like her parents there around 10:00, and then when we went out around 1:00 they were gone. UGH UGH UGH

I had a child life specialist stop by, to help with the emotional aspects of standing, and general getting out of bed. She brought some fun toys, and it got Emma happier, but she very quickly, she figured out what we were up too. She's too smart for her own good.

Then we went out to the hallway, were there is a walkway, and you can look down to the 3rd floor. So the boys got there just in time to play too. They had a great time!

So we are home now, and she had a hard ride home. Whimpered most of the way. It's just yucky. And she won't eat. Keeps saying she's not hungry. *sigh*

She is moving around a bit better, in general. Like moving her legs, and laying on her side. I think it is gravity, at this point that is scaring her. I remember my first days. Gravity is NOT a girl's best friend, after surgery down there!

She is in good spirits. I'll keep you posted on the standing!!

11:30 PM Some yippees!!!

She's been drinking great, and eating. So...drum roll please...

SHE GOT HER IV OUT!!! YAY!!!

She still is afraid to walk, that her tummy will hurt. Understandable! She is even afraid to stand up. Guess we'll be working on that tomorrow.

We tried to get her to walk, but she just cried and cried. So we gave up. I know a little bit how she feels, having had 2 c sections. Although I will say, she is doing MUCH better than I did. Of course she had her bladder cut into and I had layer, after layer, after layer, cut into... *rolling eyes*

Anyhoo...once she calmed down, and got her bed made up new, we played a little bit, and she was giggling! Oh how I've missed that giggle! We called home and talked to Daddy and the boys. Don't tell her I told you this, but she cried when she first heard each of them. And laughed when we tried to talk to Jack and he just kept pushing the buttons!! Silly boy!!

Then for some reason, we started painting...HER FACE!!! It was fun and she was so happy, and... Emma!!! Notice we have matching flowers on our hands!

She also has started talking to the people wearing scrubs! Up until now, she just ignores them. Her nurse tonight said, "Oh Emma, I've never heard your voice! It's so cute!!"

I'm worried about tonight, there is newborn next door who just had heart surgery. UGH!! And NO MOMMY!!!! I really don't get it. So she cries ALOT! Hope I can sleep through it!!

7:00 pm Still here...

Well, she is better, but still here. Right now, she is off all IV meds and fluids. And taking everything orally. But still won't walk.

We're just trying to get food in her. For dinner she ordered, pizza, mac and cheese, butterfinger milkshake, jello, sprite, veggies with dip(ok those are for me) doritos (for later munchies) and a rainbow cupcake!!! She had about 5 spoonfuls of mac and cheese, 1/8 of her 7 inch pizza, and the cupcake!

She has been on 2 walks in the wagon. And spent about 5 minutes blowing bubbles. I got her being cute and happy on video too. YAY!

So it looks like tomorrow. Another night here... let's hope it goes as well as last night!

11:00 AM Good and bad

Well...we went to bed around midnight. I was SO worried about getting any sleep. I woke up to the nurse talking to Emma, but could NOT open my eyes. Once she left, I looked at the clock, and it was ...ready.... 6:30!!! SO NICE!! Don't get me wrong, I still need a nap, like 5 or 6 hours worth.

I sat up and Emma looked over at me, and said... "Hi MOM!!!" Oh my, I almost cried! Her eyes are looking so much better. Peeing all the IV fluids out every hour will do that! She did so great this morning, but now is back to feeling yucky. She's in a lot of pain still, and FREAKS out when she has to pee. It is so exhausting, the whole process. Crying, trying to help her calm down to let it out, trying to convince her to change, changing her. UGH! And this really is a couple times an hour.

When she woke up this morning, she was laying in lots of yucky pee, so we gave her a little sponge bath, and washed her hair. I think it made the bed head worse, but hey...she's clean.

So the plan now is:
~get her to eat
~get her to take her pain meds orally
~stop her IV fluids
~we are switching her to Nubain, which will still be a constant drip, but not has sedating as the Morphine.
~they are also giving her a steroid to help with her upset tummy.
~we really want to get her out of her room. We're going to try a trip to the play room, see if that helps her feel better.
~they also have her on a schedule for blowing bubbles! So cute. It's a way to make sure she's taking deep breaths. And her lungs are not getting filled with fluid from being a blob.
~WALKING. She is not going to walk though till her IV is out. It's just a vicious cycle.

So we MAY go home today, may not. We'll see...

11:00 pm SO MUCH BETTER!!!

She really is doing much better. She has eaten a little, a cupcake, and ice cream. *rolling eyes*

She really perked up when Steve and the boys came. it was the best I've seen her since we got here. She faded fast, but it was nice to see her talking and interacting with people.

She does keep teetering back and forth with a low grade fever. Don't know what is up with that.

She has gotten WAY more vocal, which is good and bad. It is nice to see her asking for things and expressing her opinion, but...she is demanding, I always do it wrong, and she cries more now about it hurting. But ya know what, I would MUCH rather have that, than the blob!!

We've had the greatest nurses, and staff. We even have the same ones tonight as last night, so that is nice!

We'll see how overnight goes...ugh...dreading it...but I'm more encouraged about going home tomorrow.

Thanks for all the well wishes, and checking in to reading my ramblings...

It's so nice to know people are out there, rooting for us!!

6:00 pm update

Well, she has peed so much I have actually lost count. We DID figure out, if we let her pee in a pull up, laying in bed, she does MUCH better! It still hurts like crazy, but at least in the pull up, she can "hold it" while she pees, and not get pee all over her hand. Wouldn't that make you feel better?

She is still on morphine, Toradol (IV ibuprofen), Tylenol, and IV fluids. They want to start her on Lortab, but she can't take that on an empty stomach. Which brings me to our current struggle.

She has had nothing to eat, since Monday night at about 10:30 pm. And even then it was a can of pediasure. It is so sad. She wants to eat. But her tummy doesn't. She'll hold food in her hand, for like 5 minutes just looking at it.

They've said some kids do fine, others like this. At this point I don't even know if she will go home tomorrow. She hasn't even walked yet. She's just a blob in the bed, giving everyone dirty looks. A very stubborn one, but still a blob.

And when she falls asleep, she desats, as in her o2 level goes down. The morphine is famous for suppressing your breathing, but I still hate it!

She also has the WORST startle reflex when she is asleep! I HATE IT. I can't imagine it feels good on her incision,to jerk like that. She'll be totally still and then jerk really bad. It freaks me out every time. But they say it's normal, when weaning off the morphine!

We did go for a walk in a wagon. she "walked" about 5 steps to get to the wagon, hanging on my neck. I was sure I wouldn't be able to stand up, but it was ok! She liked getting out. But they REALLY want her to walk. THe problem is, her IV is in her foot, at the bend in her ankle. So she thinks it hurts. I would think applying pressure to it WOULD hurt! I know when I have an IV in my hand, I don't like to lean on it!

More good news...

Her fever seems to be gone, and she's talking a bit more. She was awake today for a long time, maybe 2 hours or so. The fact that she has an opinion is good. And...

...OH MY HECK!!!

SHE JUST GIGGLED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

What do ya know...

Maybe it won't be long after all!

11:30 am update... PEE HAPPENED!!!

Things are looking up. She finally peed!!!

YAY!!

She also sat up for a minute and painted! It didn't last very long, but hey, she wanted too!! And she wasn't wearing a shirt, so I drew one in. heehee Don't make fun of me...this is a public blog, and there are sickos out there!

Anyway...Now she's asleep. Just waiting for that smile!!!

So it's looking up, a little...

9:30 am Emma update

Still no pee. She still says it hurts, and now it stings to pee. It's bad. They brought in a portable ultrasound, and she has about 160 cc's of pee in her bladder. So everything is working, but her brain is telling her not to, cuz it will hurt! Stupid brain!

So the task at hand is getting her to pee. She's not gonna feel any better til she does. She the other task, is convincing her that this is the way to feel better. She is so full of fluid, in this picture she is awake, watching tv.

Also, now she has thrown up the only thing left in her tummy. And she won't put anything in her mouth.

*ugh*

I, am so tired I can barely see straight. And I'm anxiously awaiting the courtesy cart!! :) I REALLY need to catch some more shut eye, but they keep coming in and making her do stuff.

I'll let you know when she pees!!!

3:00 am update

Oh my...

I know none of YOU are awake. I just thought I'd let you know that I am.

*sigh*

We've tried going potty three times now, to no avail. And the last time, about 20 min ago, there was blood in the "hat"(pee collector). Now, the Doctor told me there would be some blood in her urine, but this looked more like just blood. Can I tell you how unsettling it is to see blood in the toilet, coming out of your 4 yr old.

Not good for the mommy, at 2:30 in the morning.

She just sits on the potty, and shakes. Saying, "It hurts, it hurts!" So we gave her some ditropan, and now she is back sound asleep.

The doctor has been called, and is willing to wait it out, and see if she'll go on her own. I'm not sure how I feel about this. They are also weaning her off the morphine, with hopes of taking her completely off by 6 am. They'll give her lortab about a half hour before, but still. She is clearly still in pain. I voiced my concerns, and she said they won't turn it off until she is ready. So that's good!

So...they are coming in at 4:00 to do vitals. And then 6:00 to try to get her to take some crackers, before her first oral pain meds. THAT should be fun!

So...I'm still enjoying time away with my princess, I just wish she could enjoy it a little more!!

See you in a few... :/

11:00 pm update

Well, she's not so hot. She's on a constant morphine drip, IV fluids, anti nausea meds, and IV ibuprofen. Her pupils are really small, but a little reactive to light. But only a little.

When she does wake up, she says it hurts. Her tummy. Her incision is below the bikini line, and has a dressing on it, and a little catheter hanging out to give her numbing type medicine on her incisions on her bladder.

She has sat up, and went to the potty, but didn't pee. She has another 2 hours to pee, till they do something about it, like a catheter.

*sigh*

She is mostly sleeping, and when she's awake, she is responding, and being stubborn, so that's good. But she is in pain, and I hate that. I hate that she's in pain, with all that medicine.

Hopefully, I'll get SOME sleep tonight, but it's not looking good. Look how comfy my bed looks. But I'm scared to get in. The pink is my body pillow. 4 pregnancies did bad things to my hips!

They wanna try to get her up at midnight, to try and pee. And it's no easy feat, believe me!

So...if you read this tonight, keep us in your prayers!

Until morning...

7:00 update/Sleeping Beauty

We're in her room!!

She is so sleepy still, but is mega drugged, so I'm glad she's sleeping!

She's in one of the new ones, and it is SO NICE!!! Oh my, it's like a 4 star hotel with no carpet. :) There is a sofa the folds out into a bed. It looks comfy! I'll let you know. And check out the chair! SO SO SO comfy!!! I hear it reclines! Haven't tried it yet, maybe when I'm done updating...I may never go home!! Well, I do need the sun.

Here's a couple of pictures of the bathroom, I know, I'm obsessed!! But it's so pretty!!


So now I sit... in silence! *sigh* How I love silence!

Gramma and Auntie Ruth took the boys to lunch and a movie, and Dad has gone home to take over.

Hopefully, Emma's best friend will be coming up for a visit tomorrow, and the boys of course. But other than that, we are laying low...

She can come home when she's eating and peeing good! And he said she can eat whatever she wants!! She'll be excited to hear that when she wakes up!

I'll update again in the morning, unless I feel the need to tell you something before then!!

3:30 update

She's done, and we are waiting to go see her in recovery. She did GREAT! Better than expected. And the doctor is gonna let her pee on her own, so NO CATHETER, or TUBES!!!

YAY!!!

Now, every time the phone rings here in the waiting room, we jump, and hope they hang up and say, "a parent for Emma Simmons?" I HATE this wait. It's the wait for her to wake up and be extubated. I REALLY REALLY hate this wait.

Anyways....

I let you know when we are in a room!!!